Sunday, July 16, 2023

Self-Advocacy | Adults with Disabilities: A Smooth Transition Begins Long Before Adulthood

 "Disability is not a brave struggle or courage in the face of adversity. Disability is an art. It's an ingenious way to live." ~ Neil Marcus, actor and playwright


These are the first words we read in Emily Ladau's enlightening and beautifully written book in 2021, Demystifying Disability: What to know, What to Say, and How to be an Ally. These profound words are important to keep in mind, whether you are a person with disabilities or a person who is presently free of disabilities. The world as most of us know it, has for the most part, been built for people without disabilities. Fortunately, over the last few decades there has finally been acknowledgement that not everyone's body works in the same manner. There are many barriers that need to be adjusted or removed to allow access to everyone, regardless of limitations their disability may include.

By the time a student with disabilities graduates from high school, he has not only completed all the necessary academic requirements, he has accomplished this goal in spite of many barriers and challenges that his non-disabled peers did not encounter. The student received the support of his IEP/TIEP or 504 team, the professionals who worked together to ensure he had all the resources that provided a level-playing field. 

But what comes next? After high school, a new, exciting chapter begins: adulthood and all that comes with it. Just like that, the expectations for 18-year-olds include getting a job, a home, a car, starting a family of their own... Are these aspirations possible for a young person with a disability? Absolutely. 

The most important step to ensure the success of any student is preparation for their future. Just as a non-disabled student would begin postsecondary planning with the school counselor, the Individuals with Disabilities Education Act (IDEA) requires that a disabled student will begin the transition process by the age of 16. As detailed on Disability Rights Florida website, in Florida the transition process begins at the age of 12 or in the 7th grade, whichever comes first. During this transitioning process, assessments will be administered to help the student determine his strengths, preferences, and needs.

While prior to the age of 12 the student may not have been present for the IEP/504 meetings, at this time the student not only has the opportunity to attend meetings, but he will also be participating in the meetings and advocating for himself in the planning process. This change doesn't signify the end of parental input and involvement, by any means. For some students, with more extensive disabilities, the parents or guardians will continue to make decisions. But having a disability should never prohibit a person from reaching their goals, they just need a good plan created by the student and his team.

Self-determination plays an important role in the outcome of any transitioning process, with many factors involved. In the article written by Karrie A. Shogren, PhD and Leslie A. Shaw, MA, The Impact of Personal Factors on Self-Determination and Early Adulthood Outcome Constructs in Youth With Disabilities, we learn that there are several factors that impact the success of young adults with disabilities.  Race, gender, and family income are factors that may impact the student's level of self-determination, autonomy, psychological empowerment, and self-realization.

However, when the necessary support unique to each student is provided, there is a development of confidence in his own power to overcome the challenges he will face. When a student is given the dignity to fail, he comes to realize there will be mistakes made but there are important lessons in those failures. His sense of empowerment grows as he learns how to problem solve and how to ask for help, as well as from whom. Self-determination comes from within, built in great part from the support every student requires and deserves. The family, the IEP/TIEP/504 team, and the student work together to design the path that will lead the way into a successful outcome for the student, as he enters adulthood.

For additional resources please explore these Resource Round-Up pages: 

Self-Advocacy  | Resource Round-Up for Adults with Disabilities: Postsecondary Education & Employment 
https://anaedwardsautismteacher.blogspot.com/2023/07/self-advocacy-resource-round-up-for.html   

Self-Advocacy  | Resource Round-Up for Adults with Disabilities: Policy Issues, Inclusion, Housing, and Assistance
https://anaedwardsautismteacher.blogspot.com/2023/07/self-advocacy-resource-round-up-for_16.html

References

Ladau, E. (2021). Demystifying Disability: What to know, What to Say, and How to be an 
           Ally
. Ten Speed Press.

Disability Rights Florida. Intro to Transition: Students with Disabilities, School & Work.
 https://disabilityrightsflorida.org/disability-                            
 topics/disability_topic_info/students_with_disabilities_school_work#:~:text=Students%20i    n%20special%20education%20are,transition%20planning%20IEPs%20(TIEPs). 
 

Shogren, K. A., Shaw, L.A. (2017). The Impact of Personal Factors on Self-Determination 
               and Early Adulthood Outcome Constructs in Youth With Disabilities. Journal of
               Disability Policy Studies
2017, Vol.27(4) 223-233



No comments:

Post a Comment

  The (Lack of) Effectiveness of Weighted Pressure Vests for Children with Autism Situation 1:  You've heard that weighted pressure v...